How to Serve a Hospital Family

Photo by Matheus Ferrero on Unsplash If you are a member of the Down syndrome community in any capacity, chances are you’ve been touched by a family who has spent time in the hospital or cared for an ill loved one at home. From congenital issues like heart defects and vision problems to the increased... Continue Reading →

How I Became a Hospital Mom

I have slept 72 nights in children’s hospitals, all of them as an adult. The longest stint, 58 nights, was our first. It all started days before Grace’s three-month birthday. I handed her barely eight-pound body over to a cardiac anesthesiologist for the surgery we’d been awaiting with dread since we received her congenital heart... Continue Reading →

Why I Love Social Stories

In a special needs group on Facebook recently, several parents were discussing how social situations that are new, loud, crowded, or unfamiliar can be especially overwhelming for loved ones with Down syndrome. This has been the case in our family, too. In my experience, reacting to these situations is rarely successful. When Grace gets overwhelmed... Continue Reading →

About Me

Hi! I’m Heather, a wife, mom to two daughters (one with Down syndrome), and writer. When our daughter was diagnosed with DS at birth in 2015, a flood of emotions overwhelmed me. Among the most challenging were feelings of inadequacy and ignorance - neither of which I accepted gracefully. A problem solver (read: recovering control... Continue Reading →

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